Comfort

Since I live in a state of chronic pain I need a lot of help where comfort is concerned. I made a list of things that are imperative for my comfort and why they help. This list might not be very unique or too far off from what you would want when you're not feeling well but here it is:

Baths – I get so cold and sometimes the only way I can warm up is by taking a hot bath. It also helps with my aches and pains as well as offers a calm place to relax. I often throw in a handful or two of Epsom salts to help relax muscle pain.

Fuzzy socks – Fuzzy socks are a must have. I have Reynauds so my feet have very poor circulation meaning they get to be so cold they turn purple and I can't feel them. This doesn't only happen in the winter, or when it's chilly outside. It happens all year round pretty much on a daily basis. It happens to my hands and fingers as well, although not as extremely as it happens to my feet, so mittens are also important. Ear muffs and beanies are too.

Heating blanket and heating pad – The heating blanket is necessary in the fall and winter but the heating pad is something I use all year long to help ease muscle pain and keep me feeling toasty.

Sweatpants and sweatshirts – There's not a lot to say about these two must haves. Clothes often hurt me so wearing soft and comfy things are essential. My favorite sweatpants are from the C9 by Champion line at Target. The medium longs fit me perfectly. I'm not picky about sweatshirts but they do have to be soft.

Tank tops with built in bras – What can I say besides regular bras hurt?

Blankets – I like to be cozy and use a lot of blankets. I have a stash of blankets that I alternate between.

Pillows – I need lots of pillows in my life. I need pillows on the couch, on my bed, and in the car (I can't sit in the car without a small throw pillow or two) behind my back. Pillows are important to my comfort. I have special pillows in all shapes and sizes all over the place.

Ice pack – I have a kids "boo boo" ice pack in the shape of a tiger. I also have a really cute retro looking ice pack. When I get a serious migraine or an ice pick through my brain ice helps the pain decrease.

Valium, sleeping pills, painkillers, and Pamprin (to relax my muscles) – need I say more on this subject? And no, I'm not a drug addict. I only take these (well, besides the sleeping pills which I take every night) when absolutely needed. Even when I'm in a lot of pain I try to avoid taking painkillers but there are moments when I have no other choice.

What things are important to you as far as comfort is concerned?

Meet the Cats

Losing Parker was one of the hardest things I have experienced in my 27 years of life. I loved him with all of my heart, and I still do. I miss him each and every day. I still hope that he is alive somewhere out there in the world and that one day he finds his way back to me but I'm afraid that is no longer a possibly. We, as a family, also lost our beloved Sebastian after 15 years of love, friendship, and loyalty. This summer was tough because we had to do it without our beautiful fur babies.

We are a family full of animal lovers though and we knew our family was no longer complete. On July 30th we decided it was time to start considering getting a new cat so we headed for the local animal shelter expecting nothing more than to look at the cats. Instead, we met MoMo and fell in love. He went home with us the next day, although we changed his name to Finnegan James or Finn.



Finn stole our heart by being an absolute cuddle bug. We brought him home and our relationship with him was slow to build but now he is a very important and loved member of the family. We aren't sure about his past life or what he went through before becoming a Harris but he has come to realize that this is his home and we are his family. He's a sweetheart who loves nothing more than to be held like a baby, upside down and cradled in our arms. He is very vocal and likes to talk. He is also very independent and loves dividing his time between the great outdoors and our home.

He is one of the most stunning and beautiful cats I have ever seen. He's a very unique buff color and has amber colored eyes. He is a year old and lean, tall, and very muscular.

On the 15h of September we added another furry little face to our family. My parents could tell that my heart was still hurting from not having Parker in my life anymore so they decided to do an internet search for Turkish Van Rescues. Without any luck they ended up, on accident, at a local cat rescue website where they found a picture of a 5 month old Van named Harpo. My Dad and I went to the rescue place the very next day.

I can't even begin to describe how cool this place we went to was. It was a big room full of cat furniture with 40 or so cats. We went and sat down and were mauled by kittens and cats climbing all over us and each other to receive a little affection. We had SO much fun. I don't think either of us have ever smiled more or had more fun. Anyway, back to the story. The moment I sat down a little boy, Harpos brother Harper, came and sat on my lap and gave me so much love and affection. He ended up picking me and Harper went home with us.



Harper is now named Hunter. Hunter Parker Harris to be exact. He's a 5 month old who looks and acts so much like Parker, but he is not a replacement. He is absolutely in love with me and I am with him. He refuses to be away from me for long and likes to kiss, cuddle, and snuggle. He's an absolute sweetheart and is such a mamas boy! He's very calm and lovey. He has only been with us for 8 days but he is already so loved. I hope Parker gets to meet him one day because I think he would really enjoy having a mini me.

Cooper and the cats aren't friends yet, nor are the cats friends with each other but no one seems to hate each other yet either. I have high hopes that they will all soon be very close.



Would you like if I shared photos of them once a week on the blog Facebook page?

End of Summer Catch Up

I have received a couple of really thoughtful messages from readers in the past couple of months and I just want to say that I am so thankful for the kind words. I am grateful to have all of you here on BYDLS and I want you to know that I would love to hear your stories as well. Just because I started this blog as an outlet for me to share my story and talk about the ups and downs of living with a chronic illness doesn't mean this blog has to be all about me. I would love to interact with you all, personally, on the Facebook page or in the comments section. We don't have to be sick and alone. I know you're all hear for me and you should know that I am here for you as well.

With that being said I want to do a little update post. If you follow BYDLS on Facebook you probably saw my "time off" post. I received some terrible news about the disappearance of Parker and it sent me into a tail spin. Fortunately it turned out to be a misunderstanding but it broke my heart into a million more little pieces and I essentially shut down. While he is still missing I am slowly healing, although I know I will miss him for the rest of my life.

Health wise, it's the same old story. I was actually feeling alright for a little while but I'm back to not doing all that great. I'm so exhausted all of the time and can never seem to get enough rest. I'm also always riding this weird line of being really sick and being okay. I mean, I'm always ill, but I seem to flip flop between coming down the flu and then being okay. My status can change by the hour and it makes life really difficult. I never know what to expect. Right now I'm feeling drained, I am so sore my skin even hurts, and my glands are swollen and tender. Oh, did I mention that I've been dealing with a kidney infection?

I have had chronic nose bleeds since I was 11 years old. I'm not really sure what the deal with that is but they haven't stopped. I have been dealing with an average of 2 bloody noses a day for the past few weeks. It's not very fun. I should really go to the doctor and have them cauterize me but that sounds absolutely dreadful and I think I would rather deal with the gushing nose bleeds instead.

I don't think I have mentioned that fact that I think I am fully recovered from the hell that Cymbalta, and Cymbalta withdrawal, put my body and mind through. I finally feel 100% myself again and life is so much better than it was a few months ago. I cannot believe what that drug did to me and how long it had a hold of me. It reminded me though that I am strong enough to make it through anything. I'm so glad I kept fighting through the darkest of those days and I am now free again.

What else is new? Well, I guess I failed at sharing my life with you all over the summer. The loss of 2 of my beloved furry family members made this summer a difficult one but I was lucky enough to get to travel around the state with my wonderful Parents and for that I am so grateful. We went on 2 coast vacations, 1 camping trip, and countless day trips. Up until the past year we haven't been able to travel as much as we would like so getting to go on so many adventures this summer was really awesome. I plan on doing a separate post about the trips we took with lots of pictures included but here is one photo from our Neport, OR vacation. Cooper went with us and loved the coast!




I also spent a lot of time in the pool (although I'm sad because it's too cold to float around now), read some good books, watched a lot of movies and binged on One Tree Hill (also sad about this one because I finished last night).

The weather is changing here and although I prefer to feel the sun warming my bones I am excited about the colder months. There is something really beautiful and special about fall. It's such a cozy season and I love to snuggle up under a soft blanket and read a good book. Not looking forward to winter though. I can't pretend I like snow. I don't. I don't like snow even a little bit.

Oh goodness, I just realized that I never introduced you to Finn. I did on Facebook so if you're following me there you already know about him but if you're not then you don't know about the sweet little buff Tabby cat we adopted from the local animal shelter in July. I promise I'll do a post all about him soon! Here is a photo of Finn:







I guess that's all I have to share for right now. Sorry for the excessive rambling in this post. I'll start getting my vacation and Finn posts ready so one of those will be up next. Also, I was thinking… would you like me to do a Q&A? If you have any questions for me, about me or my life personally or about my illness please feel free to ask. If I have several to answer then I might do a post but if I only get one or two then I will answer them on Facebook. Let me know what you think!

Oh, one last thing. I would love to know what you have been up to so feel free to share your update in the comments (sorry about the captcha!) or on Facebook. See you all soon!

Parker

I was a 19-year-old college student living away from home, my parents, and my pets for the first time when Parker became a part of my life in December of 2006. He was 7-months-old and came from a bad situation in which he was starved, abused, and locked in a bathroom. Naturally he had some bad habits but we all would if we had been forced to live in such awful conditions. The moment I met him I fell in love but the sweet little kitten I loved from moment one vanished and he became quite the handful. We had our ups and downs during out first year together but he was my fur child, my son and he grew to be such a huge and important piece of the puzzle that makes me who I am. He went from little hellion to perfect cat and made my life better each and every day he graced me with his love. There was no doubt in either of our minds that I was his and he was mine.



I don't know where he is now. All I can do is hope and pray that he is alive and uninjured, choosing to believe that someone has taken him into his or her home or trapped him somewhere he can't get out of. We spent 8 years together and in that time we went through so much. I leaned on him through good times and bad. I loved him with all of my heart. He brought me so much joy and love and affection. I know there are people out there who don't truly understand and think that "he's just a cat" or "a pet is just an animal" but Parker wasn't my pet. He wasn't just an animal. He was family.



I've experienced loss before but having an old, sick loved one pass on is difficult but not knowing what happened makes it even harder. I have lost my son, my parents have lost their Grandchild, and Cooper has lost his brother and best friend. It's unbearable and I don't think I will ever get over the pain or losing Parker.

May Update

I'm sorry that I have (temporarily, hopefully) lost interest in this blog, but I have been posting on Facebook but I know that not all of you are on Facebook so I thought it would be a good time to write a little update post.

2014 has been a rough year so far. Things are really starting to look up though.

I hit rock bottom in regards to my Cymbalta withdrawal and have slowly but steadily crawling out of the hole that it left me in. I was doing some more research and I found that for some people it can take up to a year after quitting to get back to normal. There were some pretty dark days in my life since I last posted but it's getting better. I'm not back to the Kassie that I was before I went on the devil drug but I'm getting there.

I quit the rest of my medications too. All of them, with the exception of my rx folic acid (because one of the meds I was on, Methorexate, made my hair fall out and the folic acid is supposed to help so I'm not quitting it until my hair gets better) and vitamin D. I realized that I wasn't any better with the meds than I was before I started taking any so I would much rather be unwell and unmedicated than unwell and overmedicated. It seems like the right decision. When I posted that I quit all my meds on the BYDLS Facebook page I said I hadn't experienced any side effects or withdrawal but I lied. I have been in more pain and had a lot more swelling but it's nothing that I can't deal with.

I got approved for disability, which is such happy and amazing news. I know I've been disabled since 2009 and my friends and family know but it's nice to have that affirmation from the government, especially since they're notorious for being tough on people who apply. Does that even make any sense? It's just nice and reassuring. It's also a huge relief to be able to pitch in so my parents don't have to carry the financial burden alone. Money isn't everything but it sure is nice.

The final news I want to share is that my dog, Sebastian, died on the 10th of May. It's been incredibly difficult to deal with for my entire family, Cooper and Parker included. He was 15 years old and such a special and integral member of the family. He was only 5 weeks old when we made him part of our family in 1999. We all remember the day perfectly – we drove from Naples to Stuart (we lived in Florida at the time) and picked him out of the entire litter. He was the runt. He had been through so much in his life - being hit by a car, losing an eye, going blind in the other, and having lymphoma but none of that stopped him from being amazing. He was my little brother and I miss him deeply every single day. Obviously as time passes it gets easier to deal with loss but it hits me so hard every once in a while. I loved him very much.



That's really all I have to share at this time. Oh, wait. I bought a bed. That's big news. I've had the same bed since 1999 (also from Florida) and it was time for a new one. I have trouble sleeping but since sleep is so important to chronically ill people I decided to invest in one. All of the salespeople tried to talk me into getting at least a Queen but I sleep in a little tiny ball with a cat curled up in a little tiny ball on my feet so a Full is all I need. It cost $900! Does anyone else think that's totally nuts?!

Burney Falls Happies

I have been fortunate to travel around the country quite a lot during my 27 years of life and have been to many spectacular places. Yesterday, my family and I spent the day at Burney Falls in California and I think it now tops my list of beautiful places. There is nothing more rejuvenating than spending the day taking in the sights, sounds, and smells of nature – especially when it's in a place as beautiful as I was yesterday!

We started the day by driving down to Dusmuir, CA and having brunch at our favorite little café called the Cornerstone Bakery and Café. We have been there twice now and we have really enjoyed both times. If you're ever in the are I highly recommend you stop in for a meal. We then got back in the car and headed for the falls. A local told us to stop at a different falls that was on the way first (I don't remember what they were called) but we did and they were really nice but not nearly as breathtaking as what we would later see. Burney Falls – well, I think I'll just let the photos do the talking. So beautiful!







We did the 1.3 mile "hike" around the falls and even though it was a bit strenuous we had a really lovely time. When you are down at the bottom of the falls you can feel the mist hitting your skin and it is such a wonderful feeling! I wish I lived closer because I would go there every single day to walk around, take in the sights, and get in some exercise.



I don't know why I feel the need to share this story but there was a man who walked by me with a huge cockroach on his shoulder and it was SO creepy! I thought maybe it had fallen on to his shoulder while he was standing under a tree or something but it turns out he had a bag full of them. Who has a pet cockroach that you take to state parks?! LOL!

After spending several hours at the falls we then headed into the town of Burney. We were starving again and nothing was open, since it was Easter, so we had to eat at McDonalds – gag! Do you know how hard it is to eat at McDonalds when you're a vegetarian?

We headed home after lunch and the drive was really nice. On the home way we also stopped in McCloud and drove around for a few minutes. They have a lot of really nice historical buildings. I loved being able to watch Shasta as we drove. I'm so in love with the mountain. Is that a weird thing to say? It's just so beautiful.

I love nothing more than spending time with my family, besides maybe spending time with my family exploring nature. I had a fantastic time and I suggest if you're anywhere near Burney Falls that you go and check them out when you can!

Oh, and just since this is supposed to be a "weekly" recap I'll tell you the other things that I did - on Thursday my Dad and I went to Medford for an appointment and did a little shopping. We got along well and had a fine time. On Friday the family went to see the spring play at the school where my Mom teaches. It was called "Cow Tippin" and it was hilarious! It was a good week for me and I hope it was for you as well!

Here are a few more photos from the day:

Sugar Sensitivity

We made a really interesting discovery about my health recently and it involves sugar. Just so you know, there is no such thing as a sugar allergy but there too much sugar does invoke an inflammatory response similar to what the immune system considers to be an allergen. Sugar suppresses the immune system and creates an imbalanced body chemistry that can lead to confusion, depression, fatigue, and muscle and joint pain.

I believe that I am sugar sensitive and it makes my illnesses worse. It makes a lot of sense because my immune system is already comprised. The sugar just causes spikes and attacks. I have decided to cut sugar out of my life and see how much it helps. I obviously can't cut sugar out entirely because there are a lot of natural sugars found in fruit, and I'm a vegetarian so fruit is important, but I can skip dessert and the treats that I often crave.

This newfound realization came about during my birthday celebration. I was feeling pretty good all day and several minutes after I ate a piece of cake I had a serious "attack" and was no longer coherent or feeling well. I'm going to test the sugar sensitivity theory out and skip sugar for the next 10 days (at least) and see if I start feeling any better. I'll keep you up to date with the results of this experiment.

Psychodiagnosis Disability Appointment

I had my final disability appointment last Saturday morning (at 8 in the morning – gross!) and it was a completely different experience than my physical exam was. This one was the psychodiagnosis, for anxiety. I was honestly terrified for this, especially after the last disability appointment was such an awful thing to go through, and googling this type of appointment did nothing to help calm my fears.

The psychologist was so nice, the total opposite of the last disability doctor I had to deal with, and made me feel totally comfortable. It was a very simple process that lasted about 35 minutes in total. All I had to do was answer some questions about myself and my pain and anxiety as well as some test type of questions. Some of them were a little difficult and I got confused but it was pretty painless overall.

When he was finished asking me all of the questions he told me that he was sorry I was experiencing all of the health problems that I am and it sucks to be so sick at my age. He also told me that no matter what happens as far as the decision I receive back about my disability that I need to keep going with it and appeal it if I am denied. He also suggested that I see someone professionally to learn coping techniques for my anxiety. When I told him about my experience with Cymbalta he told me that I was a smart girl for no longer taking it.

If you ever have to go through a psychodiagnosis like this don't be too scared because it's not the worst thing in the world. I just wanted to put this out on the world wide web because all I found in my google searches were horror stories about what a terrible experience this is. My experience was nothing like that of those that I read online. My physical exam is a different story, but the psychodiagnosis was fine and hopefully I'll find out if my claim is accepted soon!

Birthday Happies

Well, another birthday has come and gone. As I mentioned in my Birthday Blues post I couldn't help but feel down even though I tried my hardest to be in a good place. Don't get me wrong here, I had a really nice birthday but my mind wasn't in the right place. I think the reason is that I just feel so guilty for getting another year older and not being more independent or healthier. This is going to be my Birthday Happies post but I'll be talking about my weird bout of depression later on this week.

My birthday was on Thursday but we decided to wait until Sunday, when we could all be together, to celebrate. I didn't expect anything on Thursday but I woke up to a sweet card and a beautiful African Violet. My Dad also went and got me a caramel latte from Dutch Bros!

On Friday we spent the evening helping out at Mazama's (the high school where my Mom teaches) Spring Carnival where Sparrow Club (the club my Mom advises) has a booth every year. We then chaperoned the Sadie Hawkins dance, which was really very boring.

I had the final appointment for disability at 8:00 in the morning on Saturday. I'm not going to talk much about that now because I want to do an entire post on it, so keep an eye out for that. My Mom and I went out for bagels and coffee afterwards and did some grocery shopping. On Saturday evening we got dressed up and the 3 of us headed out to dinner at Mr. B's Steakhouse and then came home and watched About Time. If you haven't seen About Time you need to ASAP because it's fantastic!

My parents did such a good job of making me feel loved and celebrated on Sunday (although they do a good job of it every day!) and I'm so thankful for them. We just had a nice day at home, spending time together. My Mom made me bruschetta (my favorite!) for lunch and artichokes and fruit salad (my other favorite!) for dinner. My parents also made me a chocolate cake with buttercream frosting. I opened lovely presents and a fun birthday stocking, which is a thing we started doing and it's awesome! We finished the day by playing rummy. I had a nice day.




Did you notice how bad at Pin the Tail on the Donkey I am? I suck!

Here's hoping that 27 will be my best year yet!

27 Random Facts About Me For My 27th Birthday

I have lived in 3 states, 6 cities, 7 houses, and 3 college apartments. I have lived in Klamath Falls (in the same house) for longer than I ever lived anywhere else.

I am an actual tree hugger. When I was little my family and I would go on a walk before bed every single night and I would hug all of the trees on our street good night. I would also carry a bag and pick up all the trash I could find!

Finishing a good book or a TV series makes me really depressed. I miss the characters when they're gone.

I'm an animal person in general and really love cats and dogs but I'm scared of dogs that I don't know, especially big ones even though the only dog to ever attack me was a tiny (but seriously fat) Dachshund that belonged to my Grandparents.

When I was little I got 2nd and 3rd degree burns all over my legs. The first doctors my parents took me to said they couldn't do anything for me and that I would be covered in scars for the rest of my life but my parents thought they were wrong and took me to a specialist. I only have one visible scar remaining on my left foot and I like it. It's a constant reminder that my parents will always fight for me.

I have a lot of scars but my most memorable are the one on my chin from a rollerblading accident when I had to have 7 stitches and my friends and family called me Shaggy (as in Scooby Doo because it looked like I had his goatee) and the other is from a boating accident when I fell off a tube and got wrapped up in the rope and dragged under water for some unknown length of time.

I have a very large personal space bubble. I also don't really like to be touched.

I still have every stuffed animal that meant something to me and I can remember all of their names.

My eyes change colors – blue/green/gray.

I eat muffins and cupcakes upside down because I always have to save the best bite for last.

I'm afraid of spiders so my Dad got me a tarantula when I was younger and I hated it. I'm still afraid of them but I suck them up using my vacuum so I'm the one in control!

I'm terrified of frogs. Long story short, they used to come up through the toilets when I lived in Florida. Creepy.

My house burned down when I was 4.

I had a severe allergic reaction to my 1st MMR shot and almost died. The CDC actually wanted to study me. When I moved to Florida they wouldn't let me start school without getting another. Luckily, I didn't have a reaction to that one.

My favorite color is turquoise.

I've seen the movie Titanic over 50 times.

I was such a ham when I was little that talent scouts approached my parents many times wanting to sign me but they refused since they wanted me to have a normal childhood.

I like most veggies, and I don't eat meat, but I can't stand cauliflower or eggplant.

I have double jointed shoulder blades and arms.

I can't touch my toes.

I'm a big fan of writing lists, about anything and everything.

I've done 2 beauty/scholarship pageants coming in as 1st runner up in one of them.

I have had heart surgery.

I have only ever broken 2 bones – my arm and my tailbone.

I have never been stung by a bee, wasp, or hornet.

Stephen King and Dean Koontz are my favorite authors.

I don't drink alcohol, at all.

Disability Exam

Even though I have been unable to work for the past 5 years (whoa, I can't believe it's been that long!) I didn't apply for disability until recently. It took 4 years to get a proper diagnosis and I wanted to be armed with as much information as possible when I applied. Let me tell you, the process of applying for disability is insanely difficult. The paperwork alone is ridiculous but yesterday I had my physical examination and it was an awful experience.

First of all, the office was not the office of a doctor. It was a huge room with a single couch and then a small exam room. I'm not describing it well enough to paint you a creepy enough photo. Thank goodness my Mom was with me because I would have felt completely uncomfortable by myself. The man briefly acknowledged me when I walked in and said, "there is a form on the couch. Fill it out within the next 10 minutes." I filled it out but I don't know if I did a very thorough job. The questions were so confusing and difficult to answer.

Then he called me into the little side room and started asking me questions, aggressively. He made me feel very stupid and confused. He acted like I wasn't truthful and he didn't really let me speak. I missed out on telling him a lot of my symptoms like the weakness I experience, muscle spasms and tremors, losing time and the pins and needles I have in my legs. I even tried to tell him about the scary thing that happened to me at the coast (that I talked about in my last post) and he interrupted my story and didn't let me finish. Very few of the questions he asked me made sense and it was a really hard thing to go through. Then we did the physical exam. That part went as well as it could have, I guess. He hurt me a few times but all doctors hurt me when they poke and prod so that's not a big deal. He then walked out of the room and said, "that's it. Bye."

It was such an awkward and uncomfortable experience. I left feeling upset and mistreated. I keep dwelling on it and it's getting worse and worse. I really need to let it go, because I can't change what happened or the way I was treated. As my Mom keeps telling me, "the worst that is going to happen is that you're going to get denied and then we will have to hire a lawyer to help us appeal". I think most people have to do that anyway.

I think my biggest problem is the way that so many doctors have treated me. It is never okay to make someone feel small or stupid. I'll drop this now because I know I've talked about how I feel about the way some doctors treat their patients in the past.

I just don't understand how a doctor who obviously never read my medical file and spent 15 minutes with me can accurately judge my condition. I have an appointment with a psychologist for them to assess my memory and anxiety the day after my birthday. I hope that appointment isn't as terrible an experience as this one was.

Weekly Happies #4

The beginning of last week was pretty rough but I'm happy to be able to report that the rest of it turned out to be pretty great. I spent a lot of time outside enjoying the temporary warmth and sunshine. My Dad and I ran a lot of errands but also did some fun shopping/browsing. My Mom and I went out early one day for some bagels and shopping and managed to find some cute stuff - my Dad later joined us and it was a nice outing. We also watched the new Bonnie and Clyde. I like Emile Hirsch but it was a fail overall.



It's Spring Break, which means my Mom is home with my Dad and I, and we couldn't be happier. We are taking full advantage of the time off and have some really fun plans. Yesterday we woke up super early and headed for the coast. When I say super early I mean we left the house at 6! Anyway, it was an amazing (albeit long) day from start to finish.

Before I get in to the recap, I just want to talk about something that happened to me when we were walking on the Bandon Boardwalk. I was totally fine and then suddenly, out of nowhere, I experienced the most painful/terrifying/debilitating sensation I have ever experienced and that's saying a lot since I'm no newbie when it comes to pain. I can't even use words to describe it because it was unlike anything I have ever felt. I was "struck" through the head and neck. The pain went through me and I collapsed on the Boardwalk. My parents were close by and I managed to grab on to my Dad. I don't remember much of the actual moment besides the pain I felt ((I'm still very aware of the feeling of the pain, even more than 24 hours later)) and the fact that I couldn't see. When the attack was over I lost it and cried for the next 15 minutes or so. I came through it though and the rest of the day was fabulous. I just wanted to mention it because this is, in fact, my sick blog and not just an online journal to share the fun things I get to do.

Anyway, we walked on the Boardwalk and throughout Old Town. The shops, honestly, were all kind of weird and Bandon wasn't exactly what I thought it was going to be. We did enjoy our time there though. We didn't purchase any souvenirs, but we did pick up a couple of pieces of fudge! The area itself is gorgeous and the town is pretty cute, and after we walked around we ended up having lunch at Tony's Crab Shack where we chowed down on some fish tacos and iced tea. We then headed towards the cliffs and walked around, taking in the beauty of the ocean.



We then headed South where we accidentally stumbled across a walk-through wildlife safari and petting zoo and after slamming on the brakes, u-turning, and finding a parking spot we paid a small fortune and entered the park. This turned out to be the best mistake ever! All 3 of us enjoyed it tremendously. It was extremely silly and ridiculously fun. We got to feed all sorts of weird animals and check them out. I'm embarrassed to admit that I discovered that I'm a little bit afraid of deer, llamas, peacocks, and goats who are hungry and swarm you when you enter a pen with food. I quickly handed my animal food to my Dad because I was kind of freaked out. He was extraordinarily popular with them though and was followed by deer and llama throughout the park. They even started to nibble on his clothes.




We have a little thing for pygmy goats and there were 2 little babies! Check them out, aren't they adorable? I got to hold them but I have to tell you a secret – they're not very cuddly! I tried to get a picture of my Mom holding one of them but at the exact moment I went to snap the photo the goat squirmed out of her arms and I was headbutted by a goat… a goat with horns! Not joking. LOL!



I'm not a fan of zoos or places where animals are kept in captivity but I can't lie and tell you that it wasn't a lot of fun, because it was. We laughed, A LOT, and had a really fun time.

After that we headed back to the road and kept going South. The plan was to go to Gold Beach and walk on the beach and try to find a glass float. By this point we were running out of daylight but my parents are the sweetest and wanted me to get to feel the sand beneath my toes and find a float (which is what I desperately wanted to do). We got to the beach and it was so cold and windy that it was painful. We walked on the beach a little but I couldn't handle it.

In Brookings, we ate dinner and it wasn't very good. We were exhausted by this point and began the ridiculously long drive home. We ended up being gone from 6 am to almost 11 pm and we were so tired by the time we finally made it home but it was an awesome day and I'm so thankful I get to spend time with my family doing such fun things. We all agree, though, that our next day trip has to be somewhere closer and warmer!

Weekly Happies #3

I really need to write things down in a journal or on a notepad because I missed last week and I can't remember much! So this part will just be a quickie – We went out to lunch as a family during the week, which was nice. We finished Breaking Bad and I'm so happy with how it ended. I miss the show but I feel fulfilled by the story so I'm not too sad about it. We went to a state championship playoff game for the girl's team where my Mom teaches. They won, and went to state, but lost in the final game coming in third place. I don't think I have anything else to report about the week I skipped.

This week I spent a lot of time in the sun. So much time, in fact, that I'm a funny shade of hot pink. Woops! I love the feeling of the sun warming my bones and how good it makes me feel and I can't get enough. My Dad and dogs joined me for a while and we enjoyed the rays together. I'm technically not supposed to be in the sun because Lupus and the sun are pretty much enemies. On a side note, I was seriously considering getting a tattoo but Lupus and tattoos are also enemies. In fact, Lupus doesn't have any friends except other illnesses. What a jerk!

Speaking of how nice the weather has been; Parker is a filthy animal and likes to roll in dirt. He comes in looking like Pig Pen from Charlie Brown more often than not. He likes mud too but nothing makes him happier than a big old patch of dirt. My poor Mom has crazy allergies thanks to my little furry love and the dust he brings in and I have to keep blankets on the end of my bed just to collect his dirt but check out how cute my baby piggy is:



My Dad went to Portland for training for Civil Air Patrol for the weekend so my Mom and I went on a sushi date. We tried a new (to us) restaurant on Friday night and it was pretty good. I can't believe I used to hate sushi! I love it now, although I don't eat fish… I pretty much stick to California Rolls, although I occasionally opt for Tempura Shrimp. This time I had my trusty go to roll as well as a Tempura Vegetable Roll, which was just fried broccoli, carrots, and zucchini wrapped with rice and seaweed. It was tasty!

On Saturday we took Cooper for a drive (he LOVES drives and prefers them to walks like a lazy dog) and had a really healthy lunch (just kidding!) of fried pickles, french fries, and salad. Don't judge me! I get major cravings for fried food sometimes and fried pickles are my absolute favorite! I eat healthy 98% of the time. We went on a crazy spring-cleaning binge. We cleaned. A lot. We also went on a nice walk and spent the day together being lazy and reading. We had one of my other favorite foods for dinner – artichokes! Wait… is this turning into a "What I Have Eaten" blog? Weird.

It's now Sunday night and I'm more than happy to tell you that my Dad made it home safely. I'm always worried when my loved ones travel alone and so relieved when they arrive at their destination in one piece. If you're wondering, he had an amazing time and learned a lot. He's really excited about taking what he learned and what comes next with CAP. My parents are so sweet and thoughtful! My Mom sent my Dad to Sephora, where he picked up a couple of amazing gifts for me! I'm very thankful for their generosity. I love Sephora and they picked out some awesome stuff!




Alright, that's it I am now going to plop my butt down on the couch and catch up on the last couple episodes of The Vampire Diaries. Speaking of which, this season is boring me like no other. I usually love the show but I'm just not feeling it. Anyone else bored with it?

Finding Something to Love

I believe that getting sick has been both the best and worst things to ever happen to me. Being sick sucks. Lupus sucks. Fibromyalgia sucks. But some times bad things can lead to good things and my illness has helped me to find my passion.

When it became apparent that I couldn't work I got really down on myself. I couldn't sit at home all day and watch TV, although I did try it for a while. I became bored and developed a low sense of self worth from doing nothing with my time. When brainstorming ideas of things I could do at home I remembered that I had always loved reading beauty blogs and watching beauty videos on YouTube so I figured why not start my own blog?

I had nothing to lose so I jumped right in to the whole process. I started by sharing DIY beauty recipes and random bits and pieces but somehow as my blog, Beautiful Basics, started to grow it turned into a natural beauty destination. In addition to the DIY beauty I featured I began to work with companies by reviewing their products. It started slow but my blog has now grown to something that I'm very proud of.

Thousands of people read my thoughts and enjoy what I have to say. I didn't expect my blog to continue to grow as it has but I'm so happy with it. To be honest, I've never really followed through with anything so I thought this would find the same fate as so many things I've tried in the past. This Saturday, March 15th, marks the 3-year anniversary of Beautiful Basics and with each milestone that passes I become more and more proud of what I have accomplished.

I'm not making any money but I do receive amazing beauty products for free so I can't complain. What began as something to help pass the time has become something that I absolutely love and I hope to one day turn this passion into a career. If I had never gotten sick I wouldn't have discovered that I love to blog and write about beauty.

At the end of the day, even if everyone thinks I'm a terrible writer and has no interest in what I'm saying, at least I'm putting energy into something. Something is always better than nothing.

Birthday Blues

Today is March 10, which means that in exactly one month I will be turning 27. Since getting sick my birthday has been a really sore subject for me and each year it gets harder and harder to deal with. Last year was the worst and I'm holding out hope that I can be in a better place this year.

I have always been birthday obsessed and start planning each celebration months ahead of time. I always start a wish list and plan out my special meal and talk about what I want to do with my family but then as the actual day approaches I grow more and more depressed. My family always makes the day special for me but I still get bummed.

I feel tremendous guilt for being sick, in general, but add in gifts and special attention and I just feel as low as low can get. I don't even completely understand it. I guess it's a combination of feeling bad that another year has gone by that I can't take care of myself and that my parents can't have a normal life because of me and the fact that they like to spoil me with gifts and love on my birthday and I don't feel like I deserve it. Whoa, my apologies for the run-on sentence and plethora of ands.

I was 22 when I got sick and now I'm turning 27. That's a long time. Aren't parents supposed to be able to return to a regular adult life when their kid turns 18? Instead, my parents have to sacrifice their sanity to take care of their almost 30-year-old daughter who should be out there enjoying the world and living her own grown up life. Me being sick is harder on them than I can begin to explain. They don't ever complain and they understand me and my illness and love me, with open arms and smiles on their faces, but it's tough and it's only getting worse for them as I get sicker.

My birthday just feels like a reminder that I'm getting older and not getting any better. It just makes me feel sad.

Happy Day!

I'm ecstatic and beyond relieved. If you missed the news flash I posted yesterday – I'm reinsured! All of my crazy expensive medications are now $8, and one of them is $4!

I can even go see all of my doctors again, and more frequently. I missed them desperately. Just kidding. I'd be happy to never have to see any doctor ever again, but I digress.

My insurance is only valid until November but I'll worry about getting approved for continuation of insurance again when that time comes. For now, this takes an incredible weight off of my shoulders. I can let go of the enormous sense of guilt I have been feeling for my parents having to pay $500 a month for medications that don't even make me feel 100%.

This is a huge victory, and I couldn't be any happier.

Me & My Anxiety

There is a common misconception floating around out there in the world that people with anxiety (me) are just naturally nervous people. That could not be more wrong! For 22 years of my life I was incredibly outgoing, social, daring, and full of life. I liked performing in front of huge crowds (I even pranced around in a bikini on a stage in front of hundreds of people, not once, but twice!) and making friends out of total strangers but that all changed when I developed anxiety.

I'm not sure exactly how it happened, if it turned into an issue overnight or if something small festered until it became a huge problem in my life. It's embarrassing to say but I could easily, and very happily, never leave my home again. Being a recluse is not a healthy way of life though so I make every effort I can to talk to smile at strangers in public and answer the door when the mailman brings me a package instead of running and hiding in my closet (okay, so I don't do that with the mailman since he has become part of my routine thanks to all of the deliveries I get, but I do run and hide when it's someone I'm not expecting). It's tough to make the right, healthy choices when you're so tempted to tune out the rest of the world.

My doctor has an interesting theory that my anxiety was formed because my childhood was so wonderful and then I grew up and got out into the real world and realized how imperfect, often terrible, and scary it can be. I'm not sure if I agree with him or not though. Sure, my childhood was amazing and yes, the short time I spent as an adult wasn't ideal but I'm not sure if it was bad enough to make me so scared of so much.

Now I can't go anywhere alone. I'm too scared to be alone in public because I don't want to be forced to interact with someone I don't know or be put in an uncomfortable situation. I don't socialize much as is, so going out to the store is all I have in terms of getting out – do you have ANY idea how hard it is to make friends as an adult who has no job or hobbies outside of the home? I have no clue how to meet people, and even if I did I'm not sure I would want to. I do, though, have a desire for friendship but I'm too scared to do anything about it.

Am I sounding totally insane? I hope not. More often than not I end up feeling ashamed by the things that I write in this blog. I guess ashamed is too strong a word, but I do feel uncomfortable. I'm a strong believer that getting things out and saying them aloud (or typing them out?) is the best way to grow stronger and move on from things that may be holding you back so this is my attempt at becoming less anxious.

I'm going to leave with you one final piece of information: Don't ever crowd someone. You never know who may or may not suffer from anxiety disorder because you can't normally tell just by looking someone. Like all of my illnesses, you cannot see that I have GAD. My Mom and I were out the other day and I started to have a panic attack because a woman was standing a mere inch or two away from me talking loudly into my ear to her friend. I like to call these people space invaders. I have a bubble and I can't tolerate people in my bubble. I moved several times to get away from her and each time she moved with me. I have no clue why this happened but it wasn't a fun experience for me.

Please, for me and all of the estimated 40 million others who suffer from anxiety, do not be a space invader.

Weekly Happies #2

This week was rough and I almost regretted starting the "Weekly Happies" last week because I didn't think I was going to have anything to say in this post. The end of the week got a lot better though so I do have some small things to share!

My Dad and I had a nice day on Friday. Friday was the first day that I haven't been an awful person and we got along really well, which hasn't been so easy lately. We didn't do anything major but we went out to breakfast and did some shopping and running around. He bought me a few notebooks from Staples. I'm notebook/notepad/journal obsessed. I think I actually want to start collecting them. Wouldn't it be fun to have a collection of different shaped, sized, and colored ones from all over the place? Maybe I'm just a nerd, but I like to write and having fancy journals to write in makes me happy.

Saturday was incredible. The supplement I'm taking has made a huge difference already and I'm so grateful. I woke up at 7 and took a nice bath and we went out to breakfast as a family. We did some grocery shopping and cleaning around the house. Again, nothing major but it was a nice day anyway. My Mom and I took Cooper on a really long walk, which probably turned out to be about 2 miles, and had a really nice time. Cooper loves walks and I love Cooper. It's fun to watch him be so happy and excited about something. Here's a cute little collage of his journey:



Sunday was a lazy, rainy day. We had planned to go on a hike but the weather kept us inside. I didn't feel great but we had a nice day together. We ate some food, read some, and watched some Breaking Bad.

I'm going to end this post by sharing this picture of my furry kid. How cute is he? He makes me ridiculously happy.

Becoming my own healthcare specialist...

On Tuesday I had a little phone chat with my doctor. I'm not going to talk about what a nightmare the call was but it ended up with him giving me a prescription for a different antidepressant that, in his own words, "is not really like Cymbalta but sort of". I was struggling with deciding whether or not to start taking another antidepressant (I actually wrote an entire post about it, even asking you for your opinions, but OnSugar has chosen not to publish it because they think it's SPAM!) but I have since made a decision regarding the Effexor.

I'll put it simply – absolutely not, no way, never. I did my own research and have yet to find one piece of information (in either professional medical documents or patient forums) that suggests it works for Fibro pain. It is essentially an antidepressant and I am extremely anti antidepressants from here on out.

I was never depressed. I was put on an antidepressant that has been clinically shown to be effective for pain relief, and to some extent it was. Since quitting said antidepressant I have become depressed. I feel like it has completely changed my personality and I'm miserable. Is this caused by the withdrawal process, a month later, or did the medication permanently change my brain chemistry? I hope it's option A.

I am going to take over my heath care and personally figure out what works for me since I have never found a doctor willing to help me do so. I have found natural supplements for fibro relief and have already started taking one. They're natural, affordable, and I have a feeling they can't ruin my life more than an antidepressant could. I'm going to stay on my prescription Lupus meds as well as my sleeping meds. I'm going to start taking natural muscle relaxers and use my oxycodone sparingly.

Do you think it's a bad idea to be your own healthcare specialist? I'd like to hear your thoughts on self medicating/supplementing.

Maybe one day I'll be able to find some real help, obviously after I get reinsured because most doctors who are knowledgeable refuse to see uninsured patients. I can't tell you how angry this is making me. Where is the help for people who really need it? I just don't understand.

Weekly Happies #1

One of the best ways to feel physically and emotionally well is to reflect on positive things that happen in life. I like to think that even though every day might not be a good day there is definitely something good in every day, so with that theory in mind I am going to start doing a "Weekly Happies" post.

I'm going to try to take pictures of the little things that make me smile and write down bits and pieces of my day that make me happy so I'll essentially be sharing my positivity journal with you all.

Since Monday was a holiday my Family (minus Sebastian and Parker) went on a little drive. We planned on having lunch at Lake of the Woods but it was way too cold so we just ended up driving around eying up nature and eating our sandwiches and fruit in the car. We stopped a few places and walked around. We also found a totally random organic grocery store in the middle of nowhere. Here are some pictures from our excursion (my Mom isn't in any of them, sadly):








My Dad and I randomly decided to go to Medford on Wednesday (the next big city over, which is about an hour and a half away, where we go to do any fun shopping) and spend some money. We had a great trip. We talked on the entire drive there and back about everything. I managed to feel pretty good the entire time, although I was pretty exhausted by the time we got home. We went to the military surplus store and picked some things up for my Dad (he's a 2nd LT in the local chapter of the Civil Air Patrol), Target (where I got a throw pillow and a pack of awesome pens – sounds like boring finds but I'm pretty happy about them!), Ulta, and then did a little grocery shopping at Trader Joes. We had a lot of fun.

The pillow I picked up at Target leads me to another happy – I am totally content with the way I have my room decorated now. Since I spend so much time in my bedroom, which also functions as my office/living room/everything room, I really want it to look pretty and make me happy. I'm very happy with the way it looks. It makes me feel comfortable and cheerful. Here are some photos:








I finished reading a pretty good book, albeit not something I would normally go for, called Far, Far Away written by Tom McNeal. It was a little weird but I enjoyed it.

We started watching Season 5 of Breaking Bad and I can't wait to see how the show ends even though I know I'll be super depressed when it's over. Season 4 was so good and even though we are only on episode 3 of Season 5 I'm a little bored with it but I know it's going to get better! I think I'm a little bit in love with Jesse Pinkman and a lot in love with Aaron Paul.

I'm also obsessed with One Direction and their Midnight Memories album right now. Don't judge me. I know I'm old and they're young, but whatever.









Other things that have made me happy: hot Epsom salt baths, the sunflowers sitting in a vase on our dining room table, carrot juice to start my day instead of a cup of coffee, and shopping/getting amazing deals with my Mom on Saturday (she got a pair of $110 shoes for $37 and I picked up yet another throw pillow).









There are also a lot of other things that made me happy this week but this is just a small sampling of the things that make me smile.

Crazy Brain Chemistry

I try to keep my Facebook status updates as positive and upbeat as possible but I think this is the place where I should just let it all out. Every time I think I'm getting better I am only reminded that I'm wrong.

Last Friday was one of the worst nights I have ever had the misfortune of experiencing in my almost 27 years of life. My pain was so intense I could hardly even breathe. I hurt everywhere, inside and out. I cried hysterically for a few hours while my parents held me and comforted me. I ended up calming down after a full Valium and a Percocet (normally I just take half pills) and sleeping through the night.

My emotions, since quitting Cymbalta, have been so insanely up and down. I never had issues with my emotions before but now I'm sad and bawling one second and laughing uncontrollably the next. I'm getting angry and then indifferent within a matter of seconds. It's so crazy and incredibly embarrassing.

My Mom and I are now working on the process of appealing the insurances denial. Hopefully they will change their mind because I have had to quit another medication as well and all of them will be so much more affordable with insurance. I can go back on Cymbalta if they reinsure me because the copay will only be around $40.

However; do I really want to go back on a drug that has made me this miserable without it? Does that even make sense? If I do start it again I have to realize that it will have to be taken for the rest of my life, because if I quit I'll just have to go through all of this again. Here I am, stuck between a rock and a hard place. Is it worth it to take a medication that makes me sort of better, but not very much better, and worse without it because of it affecting my brain chemistry? Hmm… I guess I'll just have to wait for the insurance to make a decision before I can make mine.

Kassism #2

Sometimes when I stand up I am only able to walk a few feet before I collapse and fall on the ground. As is the case with my speech, which I talked about in my last post, sometimes it's funny and sometimes it's not.

Half the time I manage to say, "Oh, here I go" before tipping over. I'm serious. I say those exact words; although sometimes I do say "oops" instead of "oh".

I rarely make it to a chair. Luckily, this only really happens at home. I have, on occasion, done it in public as well though. When I'm out and about it seems to happen less when I stand up and more so when I have been standing or walking for a while. Sometimes I just have to take a seat, regardless of where I happen to be at the exact moment. For example, I had to sit in the middle of an aisle at Staples the other day.

Speaking of Staples, here is a fun fact – I worked at Staples for a month when I was in college (it sucked!) and I actually fainted thanks to Mono and hit my head on the way down. It was super scary! I can trace back a lot of my health problems to that time though. Mono often acts as a trigger for more serious conditions, particularly the condition in question – LUPUS!

Kassism #1

I came up with the idea to do a little series of random things about my illness that are kind of obscure and you may not know. It's easy to google symptoms and get an idea of how this all works but there are a lot of things that just don't get included on the wikipedia page or WebMD. I thought it might be kind of fun (that word is being used very loosely here, because how fun is any of this really?) to post a short little blog series featuring weird things that my body does. I'll start off with one of the most obvious ones, my speech.

I make up my own words and speak my own language thanks to severe aphasia. I get so frustrated trying to find words that I just let whatever wants to come out of my mouth come out. Thankfully my parents have learned to understand my language, although I honestly have no clue how because half the time I don't even know what I am saying. I seriously speak weird gibberish and they can decipher what I am saying. They're amazing.

The weirdest thing is that I can hear what I'm saying and I know what my brain is saying but can't understand what my mouth is saying. I always start out with the good intention of speaking actual English and I get really angry. I have learned to take a second when I'm done spewing nonsense and try again. Sometimes it takes me a couple of tries but I always get there eventually. Sometimes I end up kind of yelling random things until I get it, which is embarrassing.

When I am capable of forming actually words I have a problem coming up with what things are actually called so I call them something else, which is usually more complicated and difficult to say than what it actually is. The following are examples:
"Vacuuming the grass" – Mowing
"Dishwasher for clothes" – Washing machine (it honestly took me about 5 minutes to think of the real word for this one)

These are just a couple of the Kassie-isms that I use daily. It has only gotten worse as time has passed and I have made the mistake of just going with the Kassie-isms. I think it would be better for my brain if I worked it out, regardless of how long it takes, and come up with the actual name of things. I should make more of an effort from here on out.

Sometimes it's funny, sometimes it's not. The next Kassie-ism post will be a lot shorter, I promise. See you then!

Detoxing

I was lucky enough to be insured through my Mom until the age of 26 and then I was granted a 6-month extension because my doctor wrote the insurance company a letter telling them that I needed to keep the insurance to have any quality of life. After the initial 6 months the insurance company requested more information from my doctor and decided to drop me completely. The crazy thing is that my family makes too much money for me to qualify for any assistance but not enough money to be able to afford my healthcare costs. I personally have $0 as an adult so I don't really get the whole thing.

Moving on to the topic of what I want to discuss in this blog - I was on Cymbalta, although it is an antidepressant mainly it is also an FDA approved drug for fighting Fibro pain, and it actually went generic in January so imagine my shock when without insurance the little bottle of pills cost more than $200. Add onto that the cost of my other meds and the total was closer to $400 than should be possible.

My parents are wonderful and kind people who take care of me because they love me and I'm so grateful but I couldn't ask them to continue paying for a medication that is so expensive so I quit. I originally tapered off by taking my Cymbalta every other day but I felt as though that was just drawing out the inevitable withdrawal.

Google Cymbalta withdrawal right now; I'll wait. I apologize in advance if what you read gives you nightmares.

I have never felt worse than I have during this past week while detoxing from Cymbalta. I'm not through it yet but I keep telling myself that things will start to get better soon. They have to, right?

I'm in constant pain thanks to my illnesses but the pain I have been experiencing while withdrawing is just beyond anything I have ever imagined possible. I'm sick to my stomach. I have been having terrible brain zaps that feel like someone is hitting my brain with one of those thick rubber sledgehammers, and then that feeling reverberates through my entire body. I actually call it "gong-ing", because a gong gets hit and then resonates. I can't even begin to explain in writing what my body is going through. Every inch of my body, inside and out, hurts. Let's not even talk about the tremors and the spasms!

All I can do is sleep because when I'm sleeping I don't feel so bad. I do eat, but then sleep follows shortly after. I don't even have the strength to shower.

I called my doctor and he told me that he could prescribe another antidepressant to get me through this but that the withdrawal would end soon if I didn't want to take that route. I've been drinking a lot of hot lemon water, taking hot baths with Epsom salts, and taking a Valium when I can't handle it.

I'm not sure what the point of this blog post it. I don't want pity. I guess I just needed to share. Also, I think that doctors should give you a warning of what happens when you decide to quit taking a medication. I fully understand why there are so many drug addicts out there who can't stay clean. It hurts!

Through it all though, I'm still totally happy and in love with my life. I'm so grateful for my family who supports me with all of their love and understanding. Things will only get better from here!

Also, please forgive any spelling and/or grammar issues in this post. My brain isn't working all that well at this point in time.