Wednesday, November 8, 2017

The MRI Update.

I've been in so much pain lately. I haven't spent much time out of bed or off of the couch. And last week was a particularly difficult week for me. The pain was so extreme I could hardly handle it.

I had my MRI, though. I had a full-blown panic attack and it was really hard for me to be completely still for the almost 2 hours I was lying in the tube. I made it, though. And my results came back the next day.

My MRI was clear. There is nothing wrong with my brain. I do not have MS.

And I was disheartened, upset, and disappointed. I know that being angry about not having MS is the craziest kind of crazy to ever be but having MS, like I thought I did for so many years, was an answer and it was the answer that made sense. I thought that when I was diagnosed I would be put on a plan of treatment that would maybe help me feel better and live a normal life, but in the end, that wasn't the case.

It turns out that my original diagnosis is actually the correct diagnosis. I do have Lupus and Fibromyalgia, and then the recent addition of the Trigeminal Neuralgia.

If you're new to The Sick Life and aren't familiar with Lupus or Fibro but you follow pop culture then this might make it easier for you to know what they are -  Lupus is what Selena Gomez has and Fibromyalgia is what Lady Gaga has. They’ve both been in the news for their conditions a lot lately. Selena Gomez had to have a kidney transplant because of her Lupus and Lady Gaga had to cancel her tour because of the pain from her Fibro.

Anyway, I guess we’re back to square one. None of the medications I was originally on worked and they actually made me worse. That's part of the reason I didn't think the diagnosis was accurate. The treatment plan I was on is pretty much the only plan of treatment there is for my conditions. But I’m going to be referred to OHSU and maybe we’ll find a solution that will work for me.

As for my extreme pain at the moment from my TN, my doctor upped my medication again. She had to leave the state for a family emergency so I no longer have an appointment this week, or in the next month, but I'll probably see her in December and she'll add more medications then.

Oh, and remember my Ozzy Osbourne update? I'm kind of back there again, albeit not quite as bad. I already feel that I'm balancing out a bit, though, so we'll see what happens. I'm giving myself 10 days before I cut myself back again if I don't go back to human. Since the pain is still around there's no point in being a walking zombie! But I'll keep you updated.

1 comment:

  1. Ugh. I am sorry you are in so much pain and that the normal courses of treatment just don't work for you. I really hope they find something soon and that you can live a better life.